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If you are the parent of a child with OI and are interested in connecting with other OI parents we invite you to join
the OI Parents Email Group. OI is such a rare disorder and so little information is available to help you deal with the
day-to-day living, especially with a new baby. The OI Parents Email Group has over 350 members who ask and answer questions
and are happy to share personal experiences of raising a child with OI. These parents can be a tremendous resource.
To join please send an email to the following address:
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