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Newborns

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Caring For A Newborn With OI

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Kayte at 1 month

Fractures can occur shortly after birth, and unfortunately these can sometimes be caused by the way hospital staff handles infants. In order to try and reduce the incidence of early fractures, there are a few simple guidelines that may be followed:

1. An unborn infant of known OI parents will have a 50% chance of also being affected by the condition so it is always safer in these cases for the child to be born by Cesarean Section to reduce the risk of fractures during delivery.

2. The newborn baby should be handled and examined very gently, and when being weighed and measured the baby should be placed on a padded level surface.

3. Under NO circumstances whatsoever should an infant suspected of having OI or of OI parents, be routinely tested for Hip Dislocation.  This this can cause severe fractures of the femurs and ankles, so if there is any doubt at all if the child could be affected – play safe, and don’t do the test.

4. An infant suspected of having OI should NOT have their blood pressure taken with a blood pressure cuff. This can cause fractures to the limb that the cuff is placed on.

5. When an infant who is suspected of having OI is being x-rayed, great care must be taken when lying the child on a hard table so as to avoid further injury.

6. Head, trunk and buttocks should be evenly supported when lifting an OI child as grasping under the arms or around the ribs can cause unnecessary rib fractures.

7. Parents must have the opportunity to talk with staff especially at this time, when they may be in need of advice and support, there are also support groups that families can be referred to.

8. Until you learn how fragile your childs is dress your baby in loose fitting clothes. Clothing that snaps completely up the front is prefect. Take great care not to push or pull the limbs though sleeves or pant legs, gently guide the clothes over the limbs.

 

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Alexi at 1 week

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Jonathan at 1 day

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